ADHD and Stroke

ADHD And A Stroke

In 2014, I had a severe stroke that caused some paralysis on my right side. I was 54, and finally starting to not take my health for granted quite so much. I had recently switched to a diet of mostly organic food and reduced my intake of sugar and white flour. Although the stroke was quite unexpected, I couldn't be too surprised since my family has a history of heart disease. Genetics add to the risk factor , just like with ADHD, which also runs in my family. I did have a stressful job trying to keep up with my coworkers, the majority who were in their 20s and 30s. The stress likely contributed to the risk as well.
Yet, even after factoring all that, the biggest culprit was undiagnosed ADHD. People with ADHD tend to procrastinate until situations are at crisis points. Then, more often than not, we go into panic mode. Making bad choices or just ignoring our symptoms until it's too late. I actually felt I was in quite good shape, yet that was not entirely based on reality. In fact, I had hardly ever gone to a doctor in my entire adult life for checkups of any sort.

Not to say I would have done so without ADHD, however, ADHD does make it hard to stay organized. Scheduling doctor appointments and then keeping them seemed to me nearly impossible. It was just easier to wait until something forced me to go.
Six months before, I had a smaller stroke that caused no paralysis.  I can still remember that stroke like it was yesterday. I was visiting my son's new home before I had to go to work at 3:30 PM. As I stood there checking out his new television, I felt like I was going to pass out, but didn't. I sat down until I felt better. I still had intended to go to work. Walking to my car I felt lethargic and had my wife drive me home. By the time I got there I was pretty sure something was wrong, but decided I'd be okay. By that evening, it was obvious something was definitely wrong. The weakness became more focused on my right side, which we now know was a sign of a stroke. My wife drove me to the emergency room.  After three days and a battery of tests, I was out of intensive care and had stabilized. My wife came in for a visit and we heard the staff talking just outside the door. The lead RN was suggesting I should stay a few more days to have some more tests done before releasing me. The other three staff members were telling her that my charts looked good.  They were just about to release me.

That's when that good old ADHD trait of impulsiveness kicked in big-time. Without hearing her side of the story. I immediately concluded I was ready to leave. She flat out told me if I left I could die, and I'd have to sign a release stating as much. She did her best to talk me out of it, but my mind was already made up. I signed the release and walked out of the hospital. I went back to work the next day.
I'm convinced ADHD had a role in that extremely bad decision.  Dr. Russell Barkley, PhD. an internationally recognized authority on Attention Deficit Hyperactivity Disorder (ADHD or ADD), lost his brother to a single car accident at age 56. Barkley believes this was due to the symptoms common to ADHD such as a risk-taking, distractibility, and impulsiveness. Ironically, Dr. Barkley had conducted studies during his career on the dangers of driving and ADHD. Unfortunately, his brother ignored all his warnings.
I was not making regular visits with my doctor, which of course, was because I kept putting it off. Six months later, I had a major stroke. The previous evening I had stayed up until around 3:30 AM working on a project. When I woke, It was difficult to get out of bed due to weakness in my legs. I assumed that I just didn't get enough sleep. I popped my head out onto the patio to say good morning to my wife, Linda.  She immediately commented that I sounded drunk. I remember thinking that was strange, because I heard myself as speaking completely normal. My body grew weaker throughout the morning until it became clear we needed to go to the hospital again. this time It was a struggle to walk up the incline from the parking to the entrance. I insisted I didn't need a wheelchair. As soon as I checked into the ER, I was in a wheelchair. I was in a wheelchair for the next couple of months until I could walk with a cane.

In-hospital physical rehabilitation lasted a full month. Once again, my blood pressure was a constant threat. The doctors had a hard time finding the medication to control it. They tried several different combinations of blood pressure medication. Still nothing seemed to bring the pressure down. It reached to above 200/100, far higher than normal.
Finally they found the combination that did the trick. My blood pressure came down to just above normal levels. I could finally go home! My general practitioner had to sign a form before my release. He refused because I had not been to see him in months. I don't blame him for that reaction. Yet, if people understood ADHD more, they might have empathy with us. One more reason why I'm making this film.

Please consider joining me in getting my film produced and distributed so more of the 10 million will find their answers.  Consider helping produce Are You ADD?  Learn more by clicking the button below:

Are You ADD? is an autobiographical documentary about the life of Director Wes Gray who went undiagnosed with severe ADHD for fifty-three years. It covers his struggles with common ADHD symptoms throughout his life in school, work, and relationships. The film ends showing how being diagnosed brought him hope and a passion to spread awareness about the reality of ADHD.

Look and Feel:
The film starts with Gray's narration over wide shots of NYC: "It is estimated that up to ten million people have ADHD and are not aware of it. They have never been diagnosed or treated for ADHD. That's equal to the entire population of New York City. For fifty-three years I was one of those 10 million." Animated charts will visually highlight facts during the narration. Clips from interviews with leading ADHD experts are used throughout, adding to the understanding of what ADHD is... and how devastating it can be when undiagnosed.

Using family 8mm film and videos, the film will examine director Wesley Gray's life along with interviews shot at 4K.  Starting with Gray's first days in elementary school , where the symptoms of his inattentive type ADHD were first first documented in notes made by his teachers on his report cards.  A visual of his 1st grade report card reveals the
teacher's comment, "Wesley is always looking out the window, daydreaming. "If only those daydreams could have been graded! I was always creating stories and worlds in my head... which, in the end, for me, turned out to be more beneficial than the required subjects." Gray said. ADHD was not widely recognized at the time (late 1960's) and Gray's inattention was often only seen as negative, not trying hard enough, or even laziness. 

Although Gray was several grades advanced in reading, he struggled in many other subjects and his self esteem began to be adversely affected at an early age.  The pattern continued into high school where Gray started using illicit drugs and skipping classes. Gray discusses the reason he thinks he was drawn to drugs and considers it may have been a way to self medicate to relieve his ADHD.

After high school his family moved to the Pacific Northwest where he met his soon to be wife. They married when Gray was 21 and they had five children over the next fifteen years. Desperate to provide for his family, he took any work he could find, yet over the next two decades found himself losing even the simplest of jobs. 

Gray taught himself 3D animation by reading books and articles on the subject during his lunch break while working as a night watchman. He volunteered online to do some graphics for a game being made by a programmer at Jet Propulsion Labs on a personal project. Soon afterwards the programmer joined a video game division of JVC in Los Angeles and offered Gray a position as a 3D Artist. Although creative jobs were more suited (and higher paying) Gray still often found himself out of work and couldn't figure out why. He knew he wasn't stupid or lazy and had not touched drugs since his marriage. Finances did stabilize a bit with the creative type jobs. In 1995 Gray was featured on several television shows including MTV in Europe as an early member of the first ever internet band along with UK band Londonbeat and Dave Stewart of the Eurthymics among others. These experiences helped give Gray a much needed self-esteem boost and he realized his best shot at a stable income was in creative roles. Yet even with these periods of achievement, everything seemed to always fail in the end and he still couldn't understand why.

The title for the film came out of an encounter Gray had with his  factory supervisor: Gray's job at the time consisted of repeating the same simple process on parts in an assembly line, He had performed this task thousands of times flawlessly for hours a day, day after day. However, every once in a while his mind would drift off into a much more interesting imaginary world. A very large mess would ensue at his station and would result in the shutting down of the entire line until it was cleaned up. " How the #$@# did you not notice that?" Gray's supervisor barked. "I don't know" was the only thing Gray could come up with in moments like those, that seemed to happen randomly. Several disasters later his supervisor asked him, "What are you, ADD?"

Ironically, Gray did indeed have ADD, but just took the comment as just one more insult in a lifetime of insults and innuendos. Frustrated, Gray enrolled in a one year business trade school and did very well at first. However, his varying grades on tests in  subjects like accounting prompted his teacher to accuse him of cheating in front of the class. "How is it you can get an A one week and a F the next?" she asked. At the time Gray could only guess it was perhaps his hay fever making it hard to focus, which judging from the instructor's expression, was not a valid reason in her mind. On the final exams Gray barely passed and his accounting instructor told him "You should not be an accountant."  Gray had spent that year full time in college trying as hard as he could to succeed. only to fail once again to break the cycle of chronic unemployment that was becoming an ever increasing strain on his entire family.

The film shows via character narration, interviews, animation, and reenactments, Gray's struggle including his roller coaster income fluctuations, and his relationships with people. In one reenactment, in order to help the audience understand what ADHD feels like, a couple is having a romantic dinner at a restaurant. The man's wife is telling her husband a very important story. At first the man has good eye contact and focused on her every word. About halfway through the conversation using multiple audio tracks we start to hear what the man is really hearing in his head. The kitchen staff, other tables conversations, a bus going past outside the window, a kid asking his mom to take him to the restroom, etc. His brain trying to process everything at the same time. Of course, when his wife asks him a question, it's obvious he hasn't been listening and the romantic dinner is ruined. That along with other ADHD symptoms, were wreaking havoc on Gray's relationship with his wife, kids and others.

Cinematic style footage showing Gray and other subjects in the calm beauty of the Northwest U.S. is juxtaposed with Gray's narration describing the intense struggle he went through, and still has does to a lesser degree. At age 53 Gray finally read Dr. Hallowell's book Driven to Distraction. "I read the case studies one after another and realized I most definitely had severe ADHD and had all my life." Gray then adds, "The awesome thing was, all these people in the book responded to treatment and it improved their lives dramatically!" Gray went to see a psychologist for ADHD testing. "Afterwards I asked how it went" , to which the psychologist stated, "Remember all those tests you
failed in school? Well you aced this one! 

Gray went to his family physician to ask about his options for ADHD medications. "I wanted to get help as fast as possible, having been warned that my job was once again in jeopardy for randomly forgetting to clock in at my computer." The nurse came in and performed a routine blood pressure check. Her eyes grew wide and she immediately brought the doctor in who informed Gray he needed to check himself into the emergency room as he was at risk of a stroke. 

As Gray now knows, one common trait of ADHD is to put things off and act on impulse. Gray ignored the urgent nature of his condition and waited to go to the hospital. He then had a minor stroke and once again ignored the hospital staff's recommendation to stay for more tests. "At the time I was more worried about losing my job than my health" Gray said. He checked himself out and returned to work. A few weeks later he had a much more serious stroke and spent a month in hospital with his right side severely affected by the stroke. Unable to use his right hand, he lost his job which required both hands to control a mouse and a joystick to control 3D software . Over the next several months he recovered from being wheelchair bound to walking with a cane and can now work on his computer using his left hand and voice to text software. "I re-accessed my skillset and realized I could still do many of the things I love like writing, producing video, and composing music."  

Gray's hope of starting on ADHD medication was dashed when his doctors were understandably more concerned with his blood pressure and heart than his ADHD. "What's funny, I now can see that my ADD is what probably got me in this predicament." Gray said. Almost two years later he has had to focus on his heart condition and work on reducing his blood pressure.. "For now I use diet, exercise and supplements to help manage my ADHD, but soon I hope to try a low dose of some of the nonstimulant ADHD medications out there. Everyone is different, you have to find what works for you." Gray said.

The film ends with Gray slowly regaining movement on his right side and starting medical treatment for his ADHD. Looking back, Gray considers his fifty-three years of undiagnosed ADHD to have been a greater disability than his stroke.  "I consider ADHD an asset once you know what you're dealing with and treat it accordingly."

Documentary on ADHD
Join our mailing list for updates on how to get the film.
There are an estimated eight to ten million people who are unaware they have ADHD. I don't know about you, but for myself, that is simply unacceptable. Imagine for a moment that all these people were concentrated into one city such as New York which has roughly that population. If you could be a fly on the wall, what kind of scenarios do you imagine you would see in the homes, schools, and the workplaces there?

Now, put on your social worker hat. What kinds of problems with relationships are going on in this hypothetical city? What is the divorce rate?  Is crime out of control? Are the jails and prisons bursting at the seams? Up to 45% of inmates have ADHD. How badly is the mental health infrastructure strained?

Let's take a stroll down Wall Street. What kind of financial and economic ruin would you see? How much more poverty and hopelessness would there be?  What would be the effect on the economy?

Sadly, this scenario is real.  The only difference is the undiagnosed ADHD population is spread out rather than concentrated in one city. They go unnoticed, or worse, misunderstood.  The destruction all around them is tangible. The good news is: ADHD once diagnosed can be effectively managed, reducing its negative impact significantly then the positive traits can finally shine. Now what does our hypothetical city look like?

Whether you have ADHD, know someone with it, or are a healthcare professional dealing with ADHD patients, we all want to reach out and help these people who don't know what they are fighting yet. To do that we need to refocus on the basics... instead of adding to the confusion that is already out there. I think we can all agree that our first priority should be helping the 10 million to recognize they have ADHD so they can get help.

Check Out Self Help Podcasts at Blog Talk Radio with Attention Talk Radio on BlogTalkRadio
Please join me as I talk with Jeff Copper on Attention Talk Radio about how having a stroke changed the way I deal with ADHD. 

The show aired on Wednesday, Aug 12th at 8pm Eastern.  You can watch the archived show above.
ADHD documentary
Do you suspect you may have ADHD? The following is a list of common symptoms of ADHD. This list is only some of the traits of ADHD / ADD and can vary greatly:

1. Distractibility: Are you easily distracted and lose your focus when performing a task or in a conversation?

2. Disorganized:  Do you have a hard time organizing your desk, bills , schedule or anything else?

3. Restlessness: Do you often have a hard time sitting through a meeting or class?  Are you constantly moving your leg or playing with a pencil? Or is your mind racing with thoughts continually?

4. Procrastination: Is it difficult to begin a task, or do you start multiple tasks but never finish them?

5. Chronic Tardiness: Are you often late for work, school, or meetings?  Do you wait until the last minute to get out the door, only to find you forgot something and now will be late?

6. Impulsivity: Do you take unnecessary risks with finances or when driving? Do you blurt out inappropriate comments. Do you crave excitement?

7. Excessive Talking: Do you continue to pour out your thoughts even when the person you are talking to seems uninterested in the topic(s)? Do you cut them off when they speak or finish their sentences?

Don't panic, having these traits doesn't necessarily mean you have ADHD.  It is when these traits significantly interfere in your quality of life, jobs, and relationships that you should seek help from a professional.  The good news is that many people completely turn their lives around once they are diagnosed and receive treatment.

neurofeedback ADHD
I was diagnosed a couple years ago with ADHD. Went to my family practitioner and asked him about getting a prescription to Adderall.  After a standard blood pressure check, the look on my doctors face let me know this visit would not be about ADHD.

As someone who was brand new to to the idea of having ADHD, I was very hopeful that this drug treatment I had heard a lot about might be life-changing for me. due to my high blood pressure, however, there would be no stimulants for me.

Over the last couple of years I’ve looked into every treatment for ADHD that I have found and one that sounds promising to me is Neurofeedback. being a child of the 70s I remember the hype about biofeedback and witnessed firsthand this technology become relegated to near obscurity when the results didn’t live up to the hype. I have to wonder if the pharmaceutical companies didn’t have something to do with the downplaying of its effectiveness.

In the 1980s Dr. Siegfried Othmer, a physicist, and his wife Sue, a neurobiologist started treating their son who had epilepsy, Asperger's Syndrome, and Tourette’s Syndrome among other conditions. the treatment proved extremely effective and the Othmer’s became evangelists for the technology and pioneers in developing the equipment and software to enable others to use Neurofeedback with their patients.

Throughout the 80s and into the 90s study after study was done on the effective use in treating epilepsy, ADHD, anxiety and other neurological disorders. Fast-forward to 2015, and I believe we are on the brink of an explosion of advances with this technology.

Not too long ago the equipment was bulky and expensive. Not so anymore. On Amazon you can pick up the NeuroSky or Muse and start improving your focus and relaxation from the comfort of your home. Image what the future holds for this technology.

ADHD myths
As someone who just found out a couple years ago that I had ADHD for most likely all of my life, I began devouring every book,video, and white paper I could find on the subject.  One of the first things that really struck me was the wide range of opinions even among professionals regarding ADHD.

I've read everything from the authors suggesting we are damaged goods if we have ADHD and should just take our meds and shut up... to were all amazing geniuses with superhuman powers. Then of course there is the camp that denies ADHD is real.  Of course, at one time people thought the world was flat and elephants held it up.

Research continues to expose the myths and misunderstandings at a ever increasing rate.  However, until the population is fully educated about ADHD, we must not be defined by uninformed opinions about what ADHD is. Our gifts and struggles are both unique and often common to those with ADHD. Yet we never should be defined solely by ADHD, our gifts, or our struggles.  

ADHD apps
Evernote: The ultimate note taking app, Evernote but you type, record, take a picture, and much more. You can then said a alarm for a day and time to remind you. Also has a desktop app that will sink to your mobile version.

OneTab: This one is for all you people like me who think they can multitask and have 20 tabs open in their browser at any given time. This app allows you to easily send all those open tabs (or just one or two) to a list of links, sorted by date. Saves memory and confusion!

Pocket: this app will allow you disablement page easily readable format complete with pictures and links to your mobile device.

LastPass: I can’t remember where I left my keys,  much less hundreds of website passwords.  Now I don’t have to with this app.

EasilyDo: Great app for syncing your calendar, email, upcoming meetings, maps and travel time, package tracking, even boarding passes.